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| 2004
Ghana Mission |
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Notes;
pre-departure
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| We're
off! It feels strange to be leaving on Election Day.
As the rest of America wades into the political fray,
we will be leaving it behind: an overnight flight
to London, then on to Accra, the coastal capital of
Ghana. After a night in Accra, we'll catch a five-hour
bus to the city of Kumasi, our destination (I wonder
if we'll know who the U.S. president is by then?).
We're each bringing two bags: one of our own, and
one filled with medical supplies.
In
the next few days, our group;the CSI Advanced Team,
consisting of five doctors, five nurses, and four
support staff will screen the hundreds of young
Ghanaian patients waiting (hoping, praying) for
surgery. The Main Team - six more doctors and nurses
will arrive several days later, as surgery begins.
What
do we hope to do in twelve short days? First of
all, to change some young lives. Kumasi is Ghana's
second biggest city, home to over a million people,
has a long and illustrious history as the capital
of the Ashanti Empire. A rich cultural life has
existed here for centuries. However, like any city
in the developing world, there is great poverty.
A large proportion of Kumasi's inhabitants live
a precarious existence in makeshift shantytowns.
They have no health insurance, and if their children
are born with a disfiguring craniofacial deformity,
such as cleft lip or palate, they are not automatically
taken care of, as they would be in this country.
The parents must somehow scrape together the money
to pay not only the doctor's fees, but the cost
of a hospital stay. This amount is often beyond
their reach.
Cleft
lip and palate surgery can create dramatic results
in a short amount of time. A child can transform
from an outcast, hidden away within a family, into
a child able to speak, eat, and (best of all) smile
normally, and blend in with peers. This surgery
can give a child in a developing country a chance
at normal health, marriage, a job - things that
otherwise might be out of reach.
We on the CSI Team also hope to forge bonds between
the visitors and the hosts. We will learn by being
there. The people who are hosting us at Okomfo Anokye
Teaching Hospital, and kindly opening up their facility
to us, will learn from our visit. We will swap knowledge,
both medical and cultural, learn a little bit more
tolerance. Perhaps we will convince a few more people
that most Americans mean well in the world. Perhaps
we will create bonds that last beyond our stay,
into the future.
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Kumasi
Bound
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| We
reached Accra last night after 24 hours of travel,
16 of them on board a plane. It is exciting to be
near our destination, and we're eager to hop on the
bus to Kumasi, see the hospital, and meet our patients.
In the van last night from airport to hotel, we may
have set a record for most medical staff in one vehicle
(photo from Mike later . . .)
Some
thoughts on the way, as to why some of us come here
to work:
"To
reconnect to the ideals of my youth."
"To
give back to a world that has been good to me."
"To
learn and serve. I am really here to learn, honestly.
Medicine is practiced differently all over the world.
In the US, we rely heavily on machines. I can't
wait to see how things work here."
"I
want to help children, no matter where they are.
That is the wonderful thing about being a nurse;
you can help people directly, and see the results
of your care."
Next stop, Kumasi!
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The
beautiful, fertile countryside on the road from
Accra to Kumasi |
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The
hospital in Kumasi, Ghana, where the surgeries
will be performed
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Friday,
November 5 : Kumasi
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| An
exhausting, exhilarating day screening patients at
the Okomfo Anokye Teaching Hospital, where we will
set up shop. When we arrived, there were already lines
of brightly-clad Ghanaian women with their babies
swaddled with cloth to their backs. We had a brief
ceremonial meeting with the Director of the Hospital,
the Director of Surgery, the Head of Nursing, and
several other doctors and staff members, who welcomed
us and told us that our visit has inspired them to
begin to build their own Cleft Clinic for the future.
Dr.
Peter Donkor spoke to us of the tragedy of the appearance
of a cleft lip in a Ghanaian baby, the embarrassment
and horror that accompanies it. Some parents, in
their shame, fill the bathtub, hold a cloth over
the baby's face, and smother the child. Others that
live have a lifetime of stares and shunning.
Some
parents, however, are brave. They nurture their
children as best they can. And they came to us today,
from hours away, over 115 children! Some were babies,
some older children, even in their teens, still
bearing the blemish of cleft lip. There are many,
many that we can help. Tomorrow we will screen again,
then Monday surgery will start.
Africa
is impossible to describe! So different, so alive.
Two snapshots: The elegant, brilliantly swathed,
swaying figure of a woman walking over red clay
with a 5-gallon pail of water on her head. And the
twilight sky filled with a stream of robin-sized
fruit bats, flying home to rest.
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Some
of the CSI advance screening team and hospital
staff in front of the Okomfo Anokye Hospital
in Kumasi, Ghana |
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Over
115 children waited with their parents on
the first day of screening
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Monday,
November 8 : Kumasi
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The
Main Team has arrived!! They came in last night and
jumped right into the fray. Today was our first operating
day, and we were able to complete 16 cases, one a
19-year-old who barely survived being killed at birth,
and appeared at our pre-op room this morning, quietly
pleading. After a health screening, the surgeons added
him into an already busy schedule. Most of the children
who came today had traveled many hours for the screening
sessions last week, and we wanted to get them fixed
quickly so they could return home. Some, like little
Abibata Samadu, a tiny 8-yr-old with a wide bilateral
cleft lip and sickle cell disease, had come on a bus
without her parents, hoping for this chance to change
her life. A generous nurse from a northern village
brought her and several other children. These Ghanaian
children have amazing stoicism. After a shy smile
at the doctor, Abibata sat quietly enduring the repeated
prick of the IV needle into her dehydrated arm. Tears
collected in her eyes, but she did not once cry. Children
here are used to waiting. They all showed amazing
patience and willingness to undergo pain. They were
grateful for any distraction. The biggest hit, every
time?
Bubbles!! (Parents go crazy for them, too!)
One
note: it is a thrill to see the two Ghanaian members
of our team return to this city, where they have
both spent a good deal of time. Dr. Kofi Boahene,
a facial plastics surgeon training with Drs. Peter
Hilger and James Sidman (both of whom are here),
went to boarding school here. He was instrumental
in setting up this trip, and has been both guide
and interpreter. Without him, we would never have
come. And Felicia Addae, one of our operating room
nurses, actually trained in the hospital we are
visiting, 14 years ago!
One
last snapshot: an artisan in a small village we
visited yesterday, squatting over a vat of tar-like
liquid. He boils a certain root for hours, strains
it, and then uses it to make the vibrant printed
cloth that Ghana is famous for. We watched him expertly
score the fabric with a five-tined fork, then use
a hand-carved stamp to decorate the open spaces.
Other villagers sat in a circle, observing the master
at work.
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A
young patient, Abibata, before surgery
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Abibata,
after surgery
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CSI
Staff posting the surgery schedule |
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Families
and kids gather around the schedule, hoping
to see their names on the schedule
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Families
wait as their babies are in surgery and recovery |
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Tuesday,
November 9 : Kumasi
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very late night yesterday as doctors worked till midnight
dealing with issues arising from the day's surgery.
Two team members, Dr. Peter Melchert, and Nurse Practitioner
Mary Alice Seipp, spent the night at the hospital,
keeping watch over a critical patient. There were
some tired faces at breakfast, but once we reached
the hospital, team energy kicked in.
Cleft
palate can run in families, and today brought two
separate cases of siblings with cleft. Augustine
and Kwasi Owusu--a sweet 8-yr-old boy and his baby
brother--both had surgeries today. Another family,
the Achichiaas, were not as fortunate. They traveled
220 miles from a distant village with their two
children. Their 3-yr-old, Ernestina, qualified for
surgery, even though she was a bit malnourished.
But her baby brother was not healthy enough for
surgery, and must return home with his cleft lip.
The team must always put the health of the child
first in its surgical decisions, even though it
means passing up some chances to make a difference.
One
note: the quality of camaraderie on a trip like
this is unlike anything I've ever experienced. There
is an intense focus on one goal (safely helping
as many children as possible) that supersedes anything
else, and that can only be accomplished working
together. Everyone pitches in, no matter what the
job, whether it is locating an important piece of
equipment or cleaning up after snacks. Humor is
rampant. Half the joy of the experience (besides
dealing with these amazing children) is sharing
the wry, unexpected stories of the day--and ribbing
each other over new-found quirks.
The
hard things? Finding ways around hospital conditions
that we would consider substandard in the U.S. Dealing
with cultural differences that might baffle us at
first. Seeing the poverty, the haphazard way many
hang onto a livelihood. And breathing in the taxi
exhaust on the congested ride back to our hotel
each evening!
Snapshot:
seeing little Abibate Samadu (whose cleft lip was
repaired yesterday) in her green dress and gold
earrings, walk proudly into the pre-op room with
her smiling mom.
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This
19-year old young man is living on his own;
he was unwanted by his parents.
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CSI
volunteers and hospital staff are busy on the
recovery floor |
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Dr.
James Sidman, a pediatric ENT surgeon in Minnesota
and a CSI board member works side by side
with Dr. Boahene of Ghana.
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So
many of the Ghanaian hospital staff are anxious
to watch and learn from their Western counterparts |
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Wednesday,
November 10 : Kumasi
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| Since
there are many American school children reading this
weblog, I'd like to relate how Ghanaian children have
reacted to the toys and books I brought along. On
the first day of screening, I met a ten-year-old girl,
Ataa, whose English was so advanced that she read
all my picture books to me. She even told me an "Ananse"
story--a traditional Ghanaian trickster tale, which
I will try to post this week if I have time. English
is taught in school as a second language, but many
rural children have not picked up enough to follow
the stories as I read them. Still, they watch the
pictures, and we act out stories together. I like
to read "Caps For Sale" to them, which they
enjoy because all their mothers "carry their
wares upon their heads" like the peddler in the
story.
Most
rural children have never seen a jigsaw puzzle,
and neither have their parents. I gave one puzzle
to a couple of fathers (many children have come
with both parents), thinking they might pass the
time doing it. After much discussion, they sorted
the pieces into like-shaped piles, but couldn't
figure out the next step. I found the corners for
them and showed them how to line
up the edges, and after that they went like gangbusters.
One pulled me over with a delighted smile to show
me the completed puzzle.
On
the other end of the spectrum was a sophisticated
father whose son and I were playing a Concentration-like
card game. As we played, he read the directions
so thoroughly that he pointed out I had the rules
wrong! Fittingly, his son beat me soundly.
All
the children I've met, even the tiny ones, are very
adept with balls. They throw and catch incredibly
well, and love to play stacking and building games.
Soccer (or "football" as they call it)
is the biggest sport in Ghana, and the Kumasi Kotoko
Club is one of the country's best teams.
Today
in the hospital, we had another full day of surgery,
and many happy families from Monday's and Tuesday's
surgeries were discharged to return to their homes.
Komfo Anoyke Hospital general surgeons consulted
with our surgeons about a patient with a terrible
gunshot wound that had damaged his jaw, and had
a productive discussion about treatment. Tonight
the hospital is holding a symposium in which CSI
team members (both doctors and nurses) will present
information that will help sustain this cleft initiative.
The
hospital and community at large has been extremely
supportive in all aspects of our visit. They advertised
well beforehand on radio, TV, and posters so that
many patients came for screening. There have been
follow-up articles in the newspapers. And schools
and churches have spread the word as well. This
strong community involvement has strengthened hope
for improved health care in this region, and also
increased chances that the CSI team might return
here on future missions.
Snapshot
for today: A group of public school children, dressed
in the universal uniform of brown pants or skirts
and pale orange shirts, walking along the sidewalk
next to our taxi this morning. Our white faces caught
their attention, and we were moving so slowly that
they kept up with us for almost a block, running,
waving and laughing.
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19-year
old Kofi after surgery
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Fredrick
has a large tumor in the back of his head |
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Fredrick
after surgery
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Distractions
in the recovery room keep kids' minds off of
the pain |
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Friday,
November 12 : Kumasi
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| Much
to write about on our last day of surgery here in
Ghana. I just had the misfortune of writing this entire
post and then losing it to a brief power outage (quite
common here), but will try to remember what I wrote!
The
most glamorous occurrence today was an extraordinary
visit to the Ashanti
King (called the Ashantene)! The Ashanti Empire
was formed centuries ago and is now the spiritual
and cultural center of Ghana, with Kumasi as its
capital. While Ghana is now officially a democracy,
the Ashantene (much like the British queen) is a
wealthy and extremely influential leader. Dr. Peter
Donkor, our Ghanaian host, arranged the visit, which
is almost unheard of for a foreign delegation. A
delegation of seven team leaders went to the palace,
where they were ushered in to see the king, who
was dressed in a ceremonial "Enyintomah"
robe, wrapped about his body and draped over one
shoulder. Surrounded constantly by his retinue,
the Ashantene does not actually speak to the public.
Instead, he addressed Friday's remarks to his linguist,
who then spoke to an interpreter, who spoke to us.
He thanked our team for helping his subjects, praised
our Ghanaian medical hosts, and asked us (in fact,
told us it was our duty) to return again. The team
was with him for little over a half hour, but it
marked a significant moment in our mission. The
event was especially thrilling for Dr. Kofi Boahene,
who is originally from Ghana.
The
other high point of the day was a party we hosted
in the Children's Ward, a vast room that houses
over a hundred patients (including ours). As I climbed
the dark concrete stairs to the ward, I heard musical
voices echoing down the stair. The scene as I arrived
was electrifying: a huge room, filled with over
a hundred children, practically dancing in their
beds! Nurses, mothers, and siblings stood swaying,
clapping, and singing to a popular Ghanaian folk
song. A cart wheeled back and forth, distributing
candy, doughnuts, and balloons to each child. Curtains
at the huge open windows billowed in the breeze.
The mood was irresistible; before I left, I had
blown bubbles for each child, shouted the words
to the song, and joined an impromptu nurses' conga
line. It was a moment of joy and unity that I will
never forget.
Yesterday
was also a full day. There was intense debate as
we considered the case of Ana Missbel, who had been
scheduled for surgery but was discovered, in a routine
pre-op examination, to have a heart murmur. Ana
was already underweight, with a low hemoglobin (a
vital part of the blood for healing), and would
have been considered high-risk in the States--definitely
not a candidate for surgery. The mother was distraught
when she heard that surgery might not be performed.
There was the grim possibility that the baby might
be smothered if her lip were not fixed. Thus a terrible
dilemma: the operation might save the baby from
harm, but might kill her in the process. After weighing
all factors, team leaders (including Dr. Donkor)
decided the risks were too high for surgery. Fortunately
Dr. Donkor stepped in and pledged to follow the
Ana's progress, counsel the family, and perform
the surgery when she was stronger.
I
was lucky enough to ride yesterday with Jim Amaral,
Development coordinator, and Sue Baysden ("Auntie
Sue"), our Logistics queen, on their daily
errands. All week Jim and Sue have been meeting
with community leaders, and procuring whatever items
we need. Yesterday it was about a hundred AA batteries,
to power portable OR monitors, head-lights, etc.
Our faithful taxi driver "P"--who later
invited the three of us to his home and brought
his mother some chocolate--drove to a trio of roadside
stands, where he proceeded to negotiate a deal with
several of his cronies while we waited in the steamy
taxi, gawked at by curious passersby who rarely
see a white face. Ten minutes later, after much
discussion and gesticulation, he produced a box
of Duracells. Auntie Sue then stealthily pulled
out her huge wad of cedis (the local currency; the
exchange rate is 1 dollar to 10,000 cedis!) and
sealed the deal. Most small commerce is transacted
in a similar way here in cash, with small vendors,
using hot and heavy bargaining.
From
there, we went to one of Kumasi's state-subsidized
orphanages. Jim hoped to establish a connection
with the director and find some U.S. sponsors. The
orphanage buildings were rudimentary but adequate,
boasting spacious grounds, large shade trees, and
a large (if rundown) playground. And the children?
They obviously hungered for hugs, but were bright-eyed
and laughing. At first they peeped around the doorways
curiously. Then we became like three walking magnets.
As we strolled about the grounds, kids hurled their
big-eyed, bare-footed bodies at our legs and laps.
One young girl with burn scars over much of her
face and hands claimed me for the entire visit,
while Jim and Sue competed for the most-kids-in-one-lap
award. We delivered our box of toys, infant formula
and medical supplies, and pried ourselves away,
stopping to pat the good-natured orphanage dog.
I
will close now, before the power goes out again!
This mission has been an amazing experience. As
I said when I started, Africa is impossible to describe.
You must come visit yourself--or perhaps make it
possible for others to visit. If we can raise enough
funding, CSI fervently hopes to return to Ghana
in 2005 for another chance to learn and heal. Please
help us send another team to support these remarkable
people.
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Sunday,
November 14 : Back Home
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is hard to believe we are back on American soil. We
all gave a cheer as the plane touched down, for despite
the exhiliration of our work and travel, it is a wonderful
relief to be back amongst loved ones, properly paved
roads, and Starbucks coffee.
Our
final 48 hours were packed. Saturday night we invited
Ghanaian medical counterparts to the Rex Mar Hotel
(where we were staying) for a farewell dinner. The
whole gang was there, from surgeons to OR techs.
We loved seeing the normally hospital-blue-garbed
nurses dressed up in their finery. There is no question
that Ghanaian women know how to dress. No subtle
black or ecru for them. They were resplendent and
our own Felicia Addae joined them in a traditional
dress & head scarf that looked fabulous!
There
were several speeches, but the most moving was from
Nora, head surgical nurse, a tower of strength and
graciousness. She poured out her own gratitude and
that of the patients, who asked her over and over
to thank us.I would wake up every morning and see
my baby girl, and cry and cry, one parent told her.
Now my daughter has a future. I am so, so happy,
my heart is full, Nora said to us,that we are here
together, black and white, working toward a common
good.
Next
morning, after packing up, we headed on a roundabout
route to Accra, where we would catch a late-evening
flight to London. Our first stop was the village
of Bonware, home to the famous hand-loomed Kente
cloth. In a dim barn-like building filled with looms,
we watched a weaver's deft fingers zip back and
forth, producing thin strips of brilliant, intricate
designs that are sown together to form Kente cloth.
Coached by team member Kofi Boahene (whatever they
say, offer half, until you meet in the middle),
we bargained our way to scarves and bedspreads.
After
a few hours more of driving, we reached the picturesque
coastal city of Cape Coast, which was central to
Africa's slave trade. We toured Cape Coast Castle,
a fortress built on the wave-pounded rocks of the
Atlantic ocean by the British as a final clearing
house for slaves. In these grim, dank, claustrophobic
walls, hundreds of people were kept for weeks in
their own filth, before being shipped all over the
world. We saw the "Door of No Return" through which
they were marched down gangplanks to waiting boats.
And
then--after we hurried through a somber lunch to
keep to schedule--the bus wouldn't start. Kofi frantically
negotiated with several mechanics who materialized
and came to our aid. We were all glad to hear the
rumble of the bus engine and even endure three tense
hours of washboard dirt road (Ghana's version of
road construction) to reach the Accra Aiport.
Here
are some final thoughts on our voyage, gathered
from team members on the long hours of homeward-bound
travel.
HIGH
POINTS OF THE TRIP:
The people--the comraderie, both amongst ourselves
and with Ghanaian team members.
The gratitude of the patients and their families.
The many successful surgical outcomes, and knowing
what a difference we have made in their lives.
Watching the older cleft lip patients [we operated
on some young adults who had had cleft lips their
entire lives] see themselves in the mirror for the
first time after surgery.
Flying paper airplanes with an 8-year-old boy who'd
never seen one before.
LOW
POINTS OF THE TRIP:
Rest stop bathrooms.
The heat. It's unrelenting, energy-sapping.
The smog-filled air. And those children have to
breath it every day. You should see what I suctioned
out of their lungs.
Seeing the poverty. They have so little, not even
real diapers for their babies.
Having to explain to some parents that even though
the child originally qualified for surgery, we now
have to turn them away. [Our pediatrician, Dr. Peter
Melchert, diagnosed malaria in several children.
We were able to treat them for malaria, but they
were too sick to undergo surgery.]
And a final, moving high point, related by Rowie
Hansberger, Ward Nurse: A mother told me that when
she kissed her daughter after the surgery, her daughter
for the first time was able to kiss back.
That
just about sums it up from this end. Over and out
from Kumasi.
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